Actively Recruiting
CureDuchenne Link®: A Resource for Research
Led by CureDuchenne · Updated on 2024-08-20
5000
Participants Needed
10
Research Sites
521 weeks
Total Duration
On this page
AI-Summary
What this Trial Is About
CureDuchenne link is a data hub comprised of integrated biospecimens, clinical data, and self- and/or caregiver-reported information from participants. Anyone over 4 weeks old who has been diagnosed with DMD or BMD or who is a carrier of DMD or BMD can join. Parents or legal guardians can sign up their child(ren).
CONDITIONS
Official Title
CureDuchenne Link®: A Resource for Research
Who Can Participate
Eligibility Criteria
You may qualify if you...
- Currently has a confirmed diagnosis of Duchenne or Becker Muscular Dystrophy based on genetic testing, muscle biopsy, or clinical diagnosis
- Currently has a confirmed diagnosis of carrier status for Duchenne or Becker Muscular Dystrophy based on genetic testing
- Parent or guardian (for minors) or participant provides informed consent and/or assent as required
- Is 4 weeks of age or older at the time of consent
You will not qualify if you...
- Is a foster child or ward of the state
- Is a prisoner
AI-Screening
AI-Powered Screening
Complete this quick 3-step screening to check your eligibility
Trial Site Locations
Total: 10 locations
1
Arkansas Children's Hospital
Little Rock, Arkansas, United States, 72202
Actively Recruiting
2
CureDuchenne
Newport Beach, California, United States, 92660
Actively Recruiting
3
Children's Hospital of Orange County
Orange, California, United States, 92868
Actively Recruiting
4
Rare Disease Research
Atlanta, Georgia, United States, 30329
Actively Recruiting
5
University of Iowa
Iowa City, Iowa, United States, 52242
Actively Recruiting
6
Kansas University Clinical Research Center
Fairway, Kansas, United States, 66205
Actively Recruiting
7
Corewell Health
Grand Rapids, Michigan, United States, 49503
Actively Recruiting
8
Rare Disease Research Center
Hillsborough, North Carolina, United States, 27278
Actively Recruiting
9
Penn State Health
Hershey, Pennsylvania, United States, 17033
Actively Recruiting
10
Neurology Rare Disease Center
Denton, Texas, United States, 76208
Actively Recruiting
Research Team
E
Erica Rudoff
CONTACT
How is the study designed?
Study Type
OBSERVATIONAL
Masking
N/A
Allocation
N/A
Model
N/A
Primary Purpose
N/A
Number of Arms
2
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