Actively Recruiting
Endometriosis Self-Management Strategies: Exploring Empowerment and Abandonment Through Lived Experiences
Led by Wageningen University and Research · Updated on 2026-05-15
150
Participants Needed
1
Research Sites
104 weeks
Total Duration
On this page
Sponsors
W
Wageningen University and Research
Lead Sponsor
U
University of Edinburgh
Collaborating Sponsor
AI-Summary
What this Trial Is About
This observational study focuses on people living with endometriosis in Europe who are managing their condition on their own. Researchers want to understand how different support systems at personal, community, healthcare, and institutional levels affect feelings of empowerment or abandonment during self-management. The study aims to capture the real-life experiences of these individuals over time. Participants will share their everyday methods and actions for managing endometriosis through diary entries, interviews, and focus groups. There is no medical treatment or intervention tested in this study, as it purely collects qualitative data about participants' experiences. The study spans from enrollment and continues up to four years during which participants take part in these activities. During the study, participants will describe their lived experiences with endometriosis using diaries, interviews, and focus group discussions. Researchers will gather detailed personal narratives to learn about self-management over time. The main outcome measured is the qualitative information from these stories, collected throughout the study period. This approach helps explore the impact of various support structures on participants' empowerment and challenges in managing their condition.
CONDITIONS
Brief Title
Endometriosis Self-Management Strategies
Who Can Participate
Eligibility Criteria
You may qualify if you...
- Living in a European country
- 16 years or older
- Diagnosed with endometriosis or very likely to have endometriosis based on a previous assessment
- Fluent in a language spoken by the research team
You will not qualify if you...
- Not meeting one of the inclusion criteria
AI-Screening
AI-Powered Screening
Complete this quick 3-step screening to check your eligibility
Your Study Journey
Duration - 2 to 4 weeks
Participants are screened for eligibility to participate in the trial.
Duration - From enrollment until the end of focus group participation, up to four years
Participants document their lived experiences of self-managing endometriosis through diary studies, interviews, and focus groups.
Trial Site Locations
Total: 1 location
1
Leeuwenborch
Wageningen, Netherlands, 6706 KN
Actively Recruiting
Research Team
E
Erica I Selznick, MSPH
How is the study designed?
Study Type
OBSERVATIONAL
Masking
N/A
Allocation
N/A
Model
N/A
Primary Purpose
N/A
Number of Arms
1
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