European Registry Study on Anomalous Aortic Origin of Coronary Arteries Tracking patient management and outcomes over five years

What this Trial Is About

Researchers are studying the condition called Anomalous Aortic Origin of a Coronary Artery AAOCA, which is a rare congenital heart defect with various symptoms and outcomes. The lifetime risk for people with AAOCA is not well known, so this European Registry EURO-AAOCA collects data from multiple centers to understand differences in how AAOCA is managed and to improve patient care recommendations. This study collects detailed patient information in eight sections covering demographics, anatomy, symptoms, diagnostic tests, treatments including surgery or other procedures, and follow-up evaluations. Patients may undergo surgical interventions such as unroofing of the coronary artery if needed. Data is gathered for both adult patients over 30 years and younger patients under 30 years, with annual follow-up recommended for at least five years to track health and treatment outcomes. Participants provide medical and diagnostic data, including symptoms, imaging, surgical details, and post-procedure status. The registry tracks outcomes like symptom incidence at diagnosis and after surgery, adverse events, arrhythmias, and return to competitive sports over five years. Data is collected yearly and sent to the coordinating center to monitor long-term patient health and management effects. The study is observational, focusing on real-world patient follow-up and treatment approaches.

European Prospective Registry on Anomalous Aortic Origin of the Coronary Arteries