Actively Recruiting
Evaluating the Treatment in the Center for Disabled People in Aachen (MZEB Aachen) - a Registry on Patients With Severe Disabilities
Led by RWTH Aachen University · Updated on 2024-06-24
2000
Participants Needed
1
Research Sites
N/A
Total Duration
On this page
AI-Summary
What this Trial Is About
This research focuses on patients with intellectual disabilities and severe multiple disabilities treated at the MZEB Aachen, a German University Center. The study examines patient characteristics, involved healthcare providers including physicians and therapists, therapies offered, and disease progression. The center applies a multidisciplinary approach established since November 2018 to improve care for patients with disabilities in Germany. Patients receive standard treatment within the center, supported by a team of physicians, nurses, physiotherapists, occupational therapists, speech therapists, and social workers. The center collaborates with other therapists and physicians in the surrounding community. The study collects data on therapies and diagnoses over a long-term period. Participants are observed over time with assessments comparing baseline data and data after one year of treatment. Researchers measure changes in the number of therapy sessions and changes in diagnoses. This observational registry tracks disease progress and healthcare involvement. The study is open to adults aged 18 to 80 years and involves no experimental drug or intervention beyond routine care.
CONDITIONS
Brief Title
Evaluating the Treatment in the MZEB Aachen
Who Can Participate
Eligibility Criteria
You may qualify if you...
- Adults aged 18 to 80 years
- Diagnosed with intellectual disability and/or severe multiple disability with a disability degree of at least 70 and at least one noticeable sign
- Willing to participate in the study
You will not qualify if you...
- Living in an institution or prison
AI-Screening
AI-Powered Screening
Complete this quick 3-step screening to check your eligibility
Your Study Journey
Duration - 2 to 4 weeks
Participants are screened for eligibility to participate in the trial.
Duration - Several years
Participants who undergo routine care are observed to investigate patient characteristics, diagnoses, involved physicians and therapists, as well as proposed therapies and disease progress in the center.
Assessments at baseline and after one year
Trial Site Locations
Total: 1 location
1
RWTH Aachen University
Aachen, North Rhine-Westphalia, Germany, 52074
Actively Recruiting
Research Team
A
Andrea Maier, MD
R
Robin Steiner
How is the study designed?
Study Type
OBSERVATIONAL
Masking
N/A
Allocation
N/A
Model
N/A
Primary Purpose
N/A
Number of Arms
0
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