Actively Recruiting
Investigating Management, Perspectives and Attitudes Towards Care in Takayasu Arteritis
Led by University of Edinburgh · Updated on 2026-01-20
50
Participants Needed
1
Research Sites
N/A
Total Duration
On this page
AI-Summary
What this Trial Is About
Researchers are investigating the experiences of patients with Takayasu arteritis (TAK) and how doctors manage this condition. The study focuses on understanding patient perspectives on their disease and treatment, as well as physician views on diagnosis and management. The research involves collecting information through questionnaires to capture these insights from both groups. Patients diagnosed with TAK will be invited to complete an anonymous online questionnaire lasting about 25 minutes, featuring multiple-choice and short-answer questions about their symptoms, treatments, and care concerns. Physicians involved in managing TAK will also fill out a separate online questionnaire of approximately 15 minutes, exploring their approaches to diagnosis, treatment choices, and challenges faced. Participants will engage by completing their respective online surveys, which do not involve any medical procedures or interventions. The study's main outcomes are the perspectives gathered from patients and physicians on the first day of participation. This observational study is conducted by the University of Edinburgh and is designed to provide insights into TAK care without requiring in-person visits or long-term follow-up.
CONDITIONS
Brief Title
Investigating Management, Perspectives and Attitudes Towards Care in Takayasu Arteritis
Who Can Participate
Eligibility Criteria
You may qualify if you...
- For patients: Age 18 years or older
- For patients: A formal diagnosis of Takayasu arteritis
- For physicians: Must be involved in managing or making decisions for patients diagnosed with Takayasu arteritis
You will not qualify if you...
- For patients: Under 18 years old
- For patients: No formal diagnosis of Takayasu arteritis
- For patients: Lack of mental capacity or unwillingness to provide informed consent
- For patients: Not based in the UK
- For physicians: Not involved in the management or decision making for TAK patients
- For physicians: Unwilling to participate
- For physicians: Not based in the UK
AI-Screening
AI-Powered Screening
Complete this quick 3-step screening to check your eligibility
Your Study Journey
Duration - 2 to 4 weeks
Participants are screened for eligibility to participate in the trial.
Duration - 1 day
Participants complete an anonymous online questionnaire about their experiences, symptoms, treatments, and perspectives regarding Takayasu arteritis.
1 online visit
Trial Site Locations
Total: 1 location
1
University of Edinburgh
Edinburgh, United Kingdom
Actively Recruiting
Research Team
A
Alexandra Armstrong
How is the study designed?
Study Type
OBSERVATIONAL
Masking
N/A
Allocation
N/A
Model
N/A
Primary Purpose
N/A
Number of Arms
2
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