Actively Recruiting
Natural History of Wilson Disease
Led by Yale University · Updated on 2025-05-22
300
Participants Needed
6
Research Sites
621 weeks
Total Duration
On this page
Sponsors
Y
Yale University
Lead Sponsor
W
Wilson Disease Association
Collaborating Sponsor
AI-Summary
What this Trial Is About
The purpose of the registry/repository is to provide a mechanism to store data and specimens to support the conduct of future research about Wilson disease (WD). The overall aim is to determine the optimal testing for diagnosis and parameters for monitoring treatment of WD that will aid product utilization and development.
CONDITIONS
Official Title
Natural History of Wilson Disease
Who Can Participate
Eligibility Criteria
You may qualify if you...
- Known diagnosis of Wilson disease
- Able and willing to provide informed consent for adults
- Parental or guardian permission and child assent if participant is under 18 years old (or per local IRB regulations)
You will not qualify if you...
- Wilson disease diagnosis has been excluded
- Unwilling to provide informed consent or assent
AI-Screening
AI-Powered Screening
Complete this quick 3-step screening to check your eligibility
Trial Site Locations
Total: 6 locations
1
Yale University
New Haven, Connecticut, United States, 06520
Actively Recruiting
2
Advent Health
Orlando, Florida, United States, 32803
Actively Recruiting
3
Baylor College of Medicine
Houston, Texas, United States, 77030
Actively Recruiting
4
Seattle Children's Hospital
Seattle, Washington, United States, 98105
Actively Recruiting
5
Universitätsklinikum Heidelberg
Heidelberg, Germany, 69120
Actively Recruiting
6
Royal Surrey Country Hospital
Guildford, Surrey, United Kingdom, GU2
Actively Recruiting
Research Team
R
Ricarda Tomlin
CONTACT
S
Sefa Keserci, PhD
CONTACT
How is the study designed?
Study Type
OBSERVATIONAL
Masking
N/A
Allocation
N/A
Model
N/A
Primary Purpose
N/A
Number of Arms
0
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