Deployed Deep Learning Kidney Segmentation for Polycystic Kidney Disease MRI.
Akshay Goel, George Shih, Sadjad Riyahi...
https://pubmed.ncbi.nlm.nih.gov/35391774Actively Recruiting
Age: 18Years +
All Genders
ID00792155
Autosomal Dominant Polycystic Kidney Disease Data Repository
Led by The Rogosin Institute · Updated on 2025-11-12
1000
Participants Needed
1
Research Sites
N/A
Total Duration
On this page
Sponsors
T
The Rogosin Institute
Lead Sponsor
W
Weill Medical College of Cornell University
Collaborating Sponsor
AI-Summary
What this Trial Is About
Autosomal dominant polycystic kidney disease (PKD) is a common inherited condition that affects many individuals and is a leading cause of kidney failure requiring dialysis or transplantation. This condition can lead to serious complications such as high blood pressure, heart attacks, and strokes. Researchers aim to collect detailed information about PKD to better understand its impact over a patient's lifetime and to help develop improved treatments. This study is an observational data repository where participants diagnosed with PKD will have an initial detailed medical history, physical examination, and laboratory tests. Researchers will also gather extensive family history related to PKD. After the first visit, participants will return every two years for follow-up examinations to continue monitoring the condition. Participants will be involved over a long period, with follow-up visits every other year to track changes and complications associated with PKD. The research team will measure various health factors and maintain the data repository for 30 years. This long-term observation helps provide important insights into PKD progression, complications, and outcomes.
CONDITIONS
Brief Title
Polycystic Kidney Disease Data Repository
Who Can Participate
Age: 18Years +
All Genders
Eligibility Criteria
You may qualify if you...
- Any person, age 18 or older, with previously diagnosed ADPKD is eligible to participate.
You will not qualify if you...
- Inability to provide informed consent.
AI-Screening
AI-Powered Screening
Complete this quick 3-step screening to check your eligibility
1
2
3
Your Study Journey
Screening
Duration - 2 to 4 weeks
Participants are screened for eligibility to participate in the trial.
Diagnostic Evaluation
Duration - 1 visit
Participants undergo an initial detailed history, physical examination, laboratory evaluation, and provide an extensive family history of polycystic kidney disease.
1 visit (in-person)
Long-term Monitoring
Duration - Up to 30 years
Participants return for detailed follow-up examinations every other year to monitor their condition.
Follow-up visits every 2 years
Trial Site Locations
Total: 1 location
1
The Rogosin Institute
New York, New York, United States, 10021
Actively Recruiting
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Research Team
J
Jon Blumenfeld, MD
How is the study designed?
Study Type
OBSERVATIONAL
Masking
N/A
Allocation
N/A
Model
N/A
Primary Purpose
N/A
Number of Arms
0
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Published Research Related To This Trial
Detection of PKD1 and PKD2 Somatic Variants in Autosomal Dominant Polycystic Kidney Cyst Epithelial Cells by Whole-Genome Sequencing.
Zhengmao Zhang, Hanwen Bai, Jon Blumenfeld...
https://pubmed.ncbi.nlm.nih.gov/34716216