Registry of Endocrine Tumors (Thyroid, Parathyroid, Adrenal, Endocrine Pancreas, Endocrine Digestive Tube) - Eurocrine Project

What this Trial Is About

This research collects detailed information about patients with rare endocrine tumors—including thyroid, parathyroid, adrenal, endocrine pancreas, and endocrine digestive tract tumors—who undergo surgical procedures. The aim is to create a pan-European database that helps identify these rare tumors, which are difficult to distinguish at local or national levels due to their rarity. The project supports efforts to improve clinical standards, reduce differences in care across clinics and countries, and lower illness and death rates related to these tumors. Patients included in this registry are those undergoing surgical treatment for endocrine tumors at University Nancy Brabois Hospital. The registry tracks various tumor types through surgical procedures documented under specific registry numbers as part of the Eurocrine Project. There is no experimental treatment; instead, the study observes and records information before, during, and after surgery to better understand outcomes. Participants will have data collected at different time points, including preoperative imaging scans, bone density tests, and blood tests measuring hormone and metabolic levels. Researchers will monitor participants for up to 12 months after surgery to observe complications, their severity, and any mortality. This long-term follow-up will help assess surgical outcomes and support future clinical research in rare endocrine tumors. The study started in 2015 and is ongoing with no set end age or upper age limits for participants.

Registry of Endocrine Tumors (Thyroid, Parathyroid, Adrenal, Endocrine Pancreas, Endocrine Digestive Tube)