Actively Recruiting
Swiss National Registry of Adults With Congenital Heart Disease
Led by University Hospital, Basel, Switzerland · Updated on 2026-05-04
5000
Participants Needed
6
Research Sites
1056 weeks
Total Duration
On this page
AI-Summary
What this Trial Is About
Due to successes in the last decades in pediatric heart surgery and cardiology, 90-95% of the children with congenital heart disease reach adult age.This results in an increasing number of adults or "grown-ups" with congenital heart disease (ACHD or GUCH patients) that require special health care organization and training programmes. Long term complications of these GUCH patients and optimum treatment strategies are still poorly known. The aim of this registry is to collect quantitative and qualitative data regarding GUCH patients treated in specialised centres in Switzerland.
CONDITIONS
Official Title
Swiss National Registry of Adults With Congenital Heart Disease
Who Can Participate
Eligibility Criteria
You may qualify if you...
Adult (above 18 years of age) with congenital heart disease, treated in one of the Swiss centre with specialized organisation for GUCH patients.
Signed informed consent. Patients with trisomy 21: the parents or legal guardian will have to give the consent.
You will not qualify if you...
None
AI-Screening
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Trial Site Locations
Total: 6 locations
1
Basel University Hospital
Basel, Switzerland, 4031
Actively Recruiting
2
Bern University Hospital Inselspital
Bern, Switzerland, 3010
Actively Recruiting
3
Hôpitaux Universitaires de Genève HUG
Geneva, Switzerland, 1205
Actively Recruiting
4
Centre Hospitalier Universitaire Vaudois CHUV
Lausanne, Switzerland, 1011
Actively Recruiting
5
Kantonsspital St.Gallen
Sankt Gallen, Switzerland, 9007
Actively Recruiting
6
University Hospital Zurich
Zurich, Switzerland, 8091
Actively Recruiting
Research Team
D
Daniel Tobler, MD
CONTACT
How is the study designed?
Study Type
OBSERVATIONAL
Masking
N/A
Allocation
N/A
Model
N/A
Primary Purpose
N/A
Number of Arms
0
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