Actively Recruiting
Unhide® Project: A Digital Health Platform to Collect Lifestyle Data for Brain Inflammation Research
Led by Brain Inflammation Collaborative · Updated on 2026-01-22
10000
Participants Needed
1
Research Sites
390 weeks
Total Duration
On this page
Sponsors
B
Brain Inflammation Collaborative
Lead Sponsor
S
Solve ME/CFS Initiative
Collaborating Sponsor
AI-Summary
What this Trial Is About
The unhide® Project is a non-interventional, longitudinal research study designed to establish a secure data repository of demographic, health, and lifestyle information from individuals with brain inflammation and related neuroinflammatory conditions. Participants in the United States aged 2 years and older will provide self-reported health data, biometrics, and symptom diaries through the MyDataHelps™ app (branded as unhide® for this study). The goal is to create comprehensive longitudinal profiles to facilitate research into disease subtypes, causes, diagnostics, and potential treatments, as well as to identify potential participants for future optional studies. "Healthy" individuals without brain inflammation are also eligible to participate. The digital health research platform used in this study was originally developed and designed by Solve M.E and was called SolveTogether. The Brain Inflammation Collaborative (BIC) expanded upon Solve M.E.'s work to include related diagnoses, pediatric participants, enhance symptom tracking, and more. BIC and Solve M.E. combined Solve Together and unhide®, to create The unhide® Solve Together Unified Platform in 2025.
CONDITIONS
Official Title
Unhide® Project: A Digital Health Platform to Collect Lifestyle Data for Brain Inflammation Research
Who Can Participate
Eligibility Criteria
You may qualify if you...
- Be 2 years of age or older
- Currently live in the United States
- Have consistent internet access and a cell phone, tablet, or PC
- Be able to participate in English
- Be willing to share symptom and health data through the platform
- Self-identify or be diagnosed with infection-associated chronic conditions such as Long COVID, chronic Lyme, myalgic encephalomyelitis (ME/CFS), or post-acute neuropsychiatric syndrome (PANS/PANDAS)
- Self-identify or be diagnosed with neuroimmune, developmental, autonomic, or neurological conditions like migraines, dysautonomia, POTS, multiple sclerosis, or autism spectrum disorder
- Self-identify or be diagnosed with autoimmune diseases such as Lupus, Sjogren's Disease, rheumatoid arthritis, myasthenia gravis, ankylosing spondylitis, or related autoimmune conditions
- Self-identify or be diagnosed with inflammatory gastrointestinal conditions such as Crohn's Disease, Celiac Disease, or ulcerative colitis
- Self-identify or be diagnosed with behavioral and mood disorders such as anxiety, depression, bipolar disorder, PTSD, eating disorders, or OCD
- Healthy individuals without brain inflammation, including unaffected family members or household members
You will not qualify if you...
- Living outside the United States
- Being a ward of the state
- Having decisional impairment
AI-Screening
AI-Powered Screening
Complete this quick 3-step screening to check your eligibility
Trial Site Locations
Total: 1 location
1
Brain Inflammation Collaborative
Delafield, Wisconsin, United States, 53018
Actively Recruiting
Research Team
M
Megan L Fitzgerald, PhD
CONTACT
C
Christina Moon
CONTACT
How is the study designed?
Study Type
OBSERVATIONAL
Masking
N/A
Allocation
N/A
Model
N/A
Primary Purpose
N/A
Number of Arms
2
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