Brief English and Spanish Survey Detects Change in Response to Advance Care Planning Interventions.
Ying Shi, Deborah E Barnes, John Boscardin...
https://pubmed.ncbi.nlm.nih.gov/31539605/Actively Recruiting
Led by University of California, San Francisco · Updated on 2025-11-20
650
Participants Needed
6
Research Sites
N/A
Total Duration
Researchers are evaluating adapted advance care planning ACP programs for formerly chronically homeless older adults living in permanent supportive housing PSH. This study aims to address the low rates of ACP in this aging population, which faces accelerated aging, high mortality, and risk of having their end-of-life wishes unmet. The trial focuses on comparing different ways to deliver ACP and improving engagement among residents of PSH. The study tests two ways of delivering the PREPARE-PSH program, an evidence-based, easy-to-use online ACP program with videos and easy-to-read advance directive forms tailored for the PSH setting. Participants are randomly assigned by site to either a one-time 90-minute facilitated group session or a one-on-one ACP visit, both including viewing videos about choosing a medical decision maker and deciding what matters most in life. The program also provides workbooks and legal forms with PSH-specific content. Participants will be followed over time with surveys measuring their engagement in advance care planning at the start, 3 months, and 6 months after the sessions. Researchers will also conduct interviews and focus groups to understand factors influencing engagement and sustainability of the program. The total participation includes attending the session and completing follow-up assessments to evaluate ACP behaviors and preferences.
CONDITIONS
Advance Care Planning With Formerly Homeless Older Adults Residing in Permanent Supportive Housing
L
Layan Kaileh, MSW
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University of California, San Francisco
Lead Sponsor
National Institute on Aging (NIA)
Collaborating Sponsor
This table compares participation in this trial with other options available for this condition. The information is drawn from published research and the trial’s study details and is provided for educational purposes only.
| Factors | Facilitated Group ACP Session | Facilitated One-on-One ACP Visit |
|---|---|---|
| What is it? | A group-based, facilitator-led session using the PREPARE program (including a movie, supportive housing-specific video, workbook, and legal forms) to engage participants in advance care planning together. | A one-on-one, facilitator-led session using the PREPARE program (including the same movie, workbook, and legal forms) to provide personalized advance care planning support. |
| Role in trial | Intervention arm; participants are assigned to group-format ACP sessions. | Comparator arm; participants are assigned to individual ACP sessions with a facilitator. |
| Primary use/goal | To increase engagement in advance care planning, helping participants reflect on and document their values and care preferences using structured group activities. | To encourage advance care planning engagement through personalized, facilitator-led individual discussions and completion of written directives. |
| How is it given or performed? | Delivered in a group setting by facilitators following standardized scripts, using movie-based learning, workbooks, and supportive housing-specific content. | Delivered individually by a facilitator, adhering to scripts and protocols, using the same PREPARE program materials and supportive housing-specific content. |
| Evidence status | The effect of group-based ACP sessions on ACP engagement and behaviors in supportive housing is currently being evaluated. External studies of PREPARE interventions demonstrate survey-detectable improvement in ACP behaviors but have not yet established comparative outcomes for group versus one-on-one delivery in this population. | The effect of one-on-one ACP sessions on engagement and behaviors in supportive housing is being evaluated. Existing literature supports PREPARE-based individual ACP interventions in broader populations, but direct comparative evidence in this specific population and setting is limited. |
| Important limitations | Trial results are not yet published. The effectiveness of group ACP sessions in formerly homeless adults may differ from other groups, and group delivery may face unique participation or engagement barriers in supportive housing. | Outcomes for individual ACP facilitation are not yet known for this supportive housing population. Barriers common to individualized delivery—such as scheduling, participant privacy, or literacy—may affect engagement. No head-to-head published comparison is available. |
Disclaimer: This comparison is created with the help of artificial intelligence(AI) and may contain errors or missing information. It is not medical advice and does not mean one option is better or safer than another. Clinical trials are still being studied, and joining a trial is your choice. Please consult your healthcare professional before making any decisions.
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Duration - 2 to 4 weeks
Participants are screened for eligibility to participate in the trial.
1 visit (in-person)
Duration - Single session
Participants take part in a one-time 90-minute advance care planning (ACP) session either in a facilitated group or one-on-one setting. During this session, they view the PREPARE program videos and receive easy-to-read advance directive forms tailored for permanent supportive housing residents.
1 visit (in-person)
Duration - 6 months
Participants complete surveys and assessments of their ACP engagement and individual ACP behaviors at baseline, 3 months, and 6 months after the ACP session to monitor ongoing outcomes.
3 visits (at baseline, 3 months, and 6 months)
Study Type
INTERVENTIONAL
Masking
NONE
Allocation
RANDOMIZED
Model
PARALLEL
Primary Purpose
SUPPORTIVE_CARE
Number of Arms
2
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Ying Shi, Deborah E Barnes, John Boscardin...
https://pubmed.ncbi.nlm.nih.gov/31539605/University of California, San Francisco
Lead Sponsor
National Institute on Aging (NIA)
Collaborating Sponsor