Actively Recruiting
Led by York University · Updated on 2025-01-24
3000
Participants Needed
4
Research Sites
60 weeks
Total Duration
Y
York University
Lead Sponsor
C
Carswell Family Foundation
Collaborating Sponsor
Researchers are evaluating the effects of adult day programs on older adults living with dementia and their family or friend caregivers across four Canadian provinces: Alberta, British Columbia, Manitoba, and Ontario. The study aims to understand how day program attendance influences the quality of life and mental health of attendees and caregivers, as well as how different program characteristics and social identities relate to these outcomes. This observational study compares day program users and non-users to explore patterns of care and health outcomes in this population. Participants include older adults aged 65 and above with dementia who either attend an adult day program or receive other community-based continuing care services, along with their primary caregivers. The study gathers comprehensive data through surveys at baseline and follow-ups after one and two years, combined with health administrative records. Day program characteristics such as staffing and programming will be assessed, and participants will be grouped by levels of day program usage. During the study, participants will complete quality of life and mental health surveys at the start and at one- and two-year intervals. Researchers will also track cognitive and physical changes, time to admission into continuing care homes, and healthcare use including emergency visits and hospital stays over up to 2.5 years. This comprehensive approach aims to provide a detailed understanding of how adult day programs support older adults with dementia and their caregivers over time.
CONDITIONS
Assessing the Impact of DAy Programs on Individuals Living with Dementia and Their Family/friend Caregivers
You may qualify if you...
You will not qualify if you...
Complete this quick 3-step screening to check your eligibility
Duration - 2 to 4 weeks
Participants are screened for eligibility to participate in the trial.
1 visit (in-person)
Duration - 3 months (January to March 2025)
Participants complete baseline surveys and assessments including quality of life, mental health, physical and cognitive status for older adults with dementia and their caregivers.
1 baseline visit (in-person or remote)
Duration - Up to 2 years after baseline
Participants are followed over time through surveys and health data collection to track quality of life, mental health, cognitive and physical decline, healthcare use, and time to admission to continuing care homes.
Surveys at 1 year and 2 years, plus ongoing health data monitoring
Total: 4 locations
1
Edmonton and Calgary Health Zones
Edmonton & Calgary, Alberta, Canada
Not Yet Recruiting
2
Interior Health Region
Multiple, British Columbia, Canada
Not Yet Recruiting
3
Winnipeg Regional Health Authority
Winnipeg, Manitoba, Canada
Not Yet Recruiting
4
York Region
Multiple, Ontario, Canada
Actively Recruiting
M
Matthias Hoben, Dr rer medic
Study Type
OBSERVATIONAL
Masking
N/A
Allocation
N/A
Model
N/A
Primary Purpose
N/A
Number of Arms
2
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Matthias Hoben, Andrea Ubell, Colleen J Maxwell...
https://pubmed.ncbi.nlm.nih.gov/40830776