Creating Screening Tools to Assess Financial Hardship in Alzheimers Disease and Related Dementias for Patients and Caregivers

What this Trial Is About

This research aims to develop financial hardship screening measures specifically for individuals with Alzheimers Disease and related dementias ADADRD and their caregivers. These conditions often cause significant financial strain due to high out-of-pocket costs, reduced income, and difficult care decisions. The study addresses the lack of suitable screening tools by creating measures tailored to the unique challenges faced by these patients and their families. The study involves multiple phases. Initially, interviews with patients and caregivers will explore key financial hardship indicators and caregiving roles. These interviews will inform the creation of preliminary screening measures, reviewed by experts and advisory boards. Subsequently, large surveys will be conducted with people with ADADRD and their caregivers to refine and validate these measures using advanced statistical methods. The study also examines how factors like race, disease stage, and social networks influence financial hardship. Participants will take part in interviews and surveys, either remotely or by mail, with consent obtained appropriately. Data collected includes financial stressors, caregiving costs, and coping strategies. Researchers will analyze qualitative and quantitative data to ensure the measures accurately reflect financial hardship in diverse groups. Participants will receive compensation and informational resources. The studys results aim to improve identification of financial difficulties, guiding better support for affected individuals and caregivers.

Development of Measures to Screen for Financial Hardship in Alzheimer's Disease and Dementia