A Smartphone App for Increasing Live Organ Donation.
K Kumar, E A King, A D Muzaale...
https://pubmed.ncbi.nlm.nih.gov/27402293Actively Recruiting
Phase Not Applicable
Age: 18Years +
All Genders
Healthy Volunteers
ID03803423
Dissemination of the Donor Application: Utilizing Social Media to Identify Potential Live Organ Donors
Led by Johns Hopkins University · Updated on 2025-11-10
1000
Participants Needed
6
Research Sites
N/A
Total Duration
On this page
Sponsors
J
Johns Hopkins University
Lead Sponsor
M
MaineHealth
Collaborating Sponsor
AI-Summary
What this Trial Is About
This research aims to help patients waiting for organ transplants by using a web-based application to improve communication about their need for a living donor through social media. Many transplant candidates face challenges like lack of education and reluctance to discuss their illness, which makes finding a live donor difficult. The study explores whether spreading awareness through social media can help candidates successfully find living donors. Participants will use a novel web-based tool called the Donor App to share their personal transplant stories on platforms like Facebook and other social networks. Select physicians and research staff at about 15 transplant hospitals will offer the app to patients who might benefit. After consent, patients receive a secure invitation link to access the app and use it indefinitely. Throughout the study, researchers will monitor how many potential donors are identified and how many live donor transplants occur over up to five years. They will also track app usage by measuring story completion and sharing activity. The study involves ongoing evaluation of the app’s implementation and participant engagement, supporting patients through their transplant journey.
CONDITIONS
Brief Title
Dissemination of the Donor Application: Utilizing Social Media to Identify Potential Live Organ Donors
Who Can Participate
Age: 18Years +
All Genders
Healthy Volunteers
Eligibility Criteria
You may qualify if you...
- At least 18 years of age
- On the kidney-only or liver-only transplant waiting list at a collaborating center
You will not qualify if you...
- Younger than 18 years of age
- Not on the kidney or liver transplant waiting list
- On multiple organ transplant waiting lists
AI-Screening
AI-Powered Screening
Complete this quick 3-step screening to check your eligibility
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2
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Your Study Journey
Screening
Duration - 2 to 4 weeks
Participants are screened for eligibility to participate in the trial.
Treatment
Duration - Indefinite use
Participants use the Donor App indefinitely to create and share their transplant story via social media to identify potential live donors.
Trial Site Locations
Total: 6 locations
1
Scripps Green Hospital
San Diego, California, United States, 92037
Enrolling by Invitation
2
Yale University
New Haven, Connecticut, United States, 06520
Enrolling by Invitation
3
Rush University Medical Center
Chicago, Illinois, United States, 60612
Not Yet Recruiting
4
Maine Medical Center
Portland, Maine, United States, 04102
Enrolling by Invitation
5
The Johns Hopkins Hospital
Baltimore, Maryland, United States, 21218
Actively Recruiting
6
Washington University in St. Louis
St Louis, Missouri, United States, 63110
Enrolling by Invitation
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Research Team
A
Andrew Cameron, MD PhD
How is the study designed?
Study Type
INTERVENTIONAL
Masking
NONE
Allocation
NA
Model
SINGLE_GROUP
Primary Purpose
OTHER
Number of Arms
1
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Published Research Related To This Trial
Beyond the Billboard: The Facebook-Based Application, Donor, and Its Guided Approach to Facilitating Living Organ Donation.
K A Bramstedt, A M Cameron
https://pubmed.ncbi.nlm.nih.gov/27501516