Actively Recruiting
Educational, Social Support, and Nutritional Interventions and Their Cumulative Effect on Pregnancy Outcomes and Quality of Life in Teen and Adult Women With Phenylketonuria
Led by Emory University · Updated on 2026-05-07
200
Participants Needed
1
Research Sites
2195 weeks
Total Duration
On this page
AI-Summary
What this Trial Is About
The purpose of this project is to study the effectiveness of teaching teens and young women with Phenylketonuria (PKU) or Maple Syrup Urine Disease (MSUD) about their disease and nutrition related issues in a camp environment. It will also look at pregnancy outcome results in women with PKU who attended Metabolic Camp and compare their results to other women with PKU who have not attended the Metabolic Camp.
CONDITIONS
Official Title
Educational, Social Support, and Nutritional Interventions and Their Cumulative Effect on Pregnancy Outcomes and Quality of Life in Teen and Adult Women With Phenylketonuria
Who Can Participate
Eligibility Criteria
You may qualify if you...
- Diagnosed with PKU or other aminoacidopathy
- Female
- Age 11 years or older
- Able to provide informed consent
- Adult camp counselors or staff determined to be in good health
- Not diagnosed with PKU, MSUD, or other hereditary metabolic disorder
- Willing and able to provide written informed consent
- Willing and able to comply with relevant camp guidelines and study procedures
You will not qualify if you...
- Not meeting all inclusion criteria
AI-Screening
AI-Powered Screening
Complete this quick 3-step screening to check your eligibility
Trial Site Locations
Total: 1 location
1
Emory University Department of Human Genetics
Atlanta, Georgia, United States, 30322
Actively Recruiting
Research Team
R
Rani H Singh, PhD RD
CONTACT
K
Kristen Narlow, MS RD
CONTACT
How is the study designed?
Study Type
INTERVENTIONAL
Masking
NONE
Allocation
NA
Model
SINGLE_GROUP
Primary Purpose
PREVENTION
Number of Arms
1
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