Actively Recruiting
Epilepsy Learning Healthcare System (ELHS)
Led by Epilepsy Foundation of America · Updated on 2024-08-30
100000
Participants Needed
13
Research Sites
4169 weeks
Total Duration
On this page
AI-Summary
What this Trial Is About
The Epilepsy Learning Health System (ELHS) is a quality improvement and research network to improve outcomes for people with epilepsy. The ELHS is designed as a model of value-based chronic care for epilepsy as envisioned by the National Academies of Medicine Committee in their landmark reports "The Learning Health System" and "Epilepsy Across the Spectrum: Promoting Health and Understanding". The ELHS network is a collaboration among clinicians, patients and researchers that promotes the use of data for multiple purposes including one-on-one clinical care, population management, quality improvement and research. The ELHS Registry includes data on children and adults with epilepsy collected during the process of standard epilepsy care. These data are used to create population health reports and to track changes in outcomes over time. ELHS teams use quality improvement methods, such as Plan-Do-Study-Act (PDSA) cycles, to continuously learn how to improve care.
CONDITIONS
Official Title
Epilepsy Learning Healthcare System (ELHS)
Who Can Participate
Eligibility Criteria
You may qualify if you...
- Patient is in an established care relationship with the ELHS site
You will not qualify if you...
- Patients not currently in or expecting to be in an established care relationship with the ELHS site (such as patients seen only for a second opinion)
- Patients who do not meet diagnostic criteria for epilepsy after evaluation will not be analyzed in epilepsy-specific groups but will remain in the registry
AI-Screening
AI-Powered Screening
Complete this quick 3-step screening to check your eligibility
Trial Site Locations
Total: 13 locations
1
Barrow Neurological Institute Comprehensive Epilepsy Center
Phoenix, Arizona, United States, 85013
Actively Recruiting
2
Children's Hospital Los Angeles
Los Angeles, California, United States, 90027
Not Yet Recruiting
3
University of Southern California
Los Angeles, California, United States, 90032
Actively Recruiting
4
UC Health University of Colorado Anshutz
Aurora, Colorado, United States, 80045
Actively Recruiting
5
Epilepsy Foundation
Bowie, Maryland, United States, 20716
Actively Recruiting
6
Partners - Massachusetts General Hospital Epilepsy Service (MGH)/ Partners - Brigham and Women's (BWH)
Boston, Massachusetts, United States, 02114
Actively Recruiting
7
Brigham & Women's Hospital
Boston, Massachusetts, United States, 02115
Actively Recruiting
8
Akron Children's Hospital
Akron, Ohio, United States, 44308
Not Yet Recruiting
9
Cincinnati Children's Hospital Comprehensive Epilepsy Center (CCHMC)
Cincinnati, Ohio, United States, 45229
Not Yet Recruiting
10
University of Cincinnati Gardner Neuroscience Institute Epilepsy Center
Cincinnati, Ohio, United States, 45267
Actively Recruiting
11
Penn State Hershey
Hershey, Pennsylvania, United States, 17033
Actively Recruiting
12
Children's Hospital of Philadelphia (CHOP)
Philadelphia, Pennsylvania, United States, 19104
Actively Recruiting
13
UT Southwestern Children's Dallas
Dallas, Texas, United States, 75063
Actively Recruiting
Research Team
B
Brandy E Fureman, PhD
CONTACT
K
Kathleen Farrell, MB BCH BAO
CONTACT
How is the study designed?
Study Type
OBSERVATIONAL
Masking
N/A
Allocation
N/A
Model
N/A
Primary Purpose
N/A
Number of Arms
12
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