Actively Recruiting

Age: 0Years - 18Years
All Genders
NCT06585618

A Multicenter Pediatric Deep Brain Stimulation Registry

Led by Boston Children's Hospital · Updated on 2026-03-18

100

Participants Needed

1

Research Sites

260 weeks

Total Duration

On this page

AI-Summary

What this Trial Is About

There is limited data on outcomes for children who have undergone deep brain stimulation (DBS) for movement disorders, and individual centers performing this surgery often lack sufficient cases to power research studies adequately. This study aims to develop a multicenter pediatric DBS registry that allows multiple sites to share clinical pediatric DBS data. The primary goals are to enable large-scale, well-powered analyses of the safety and efficacy of DBS in the pediatric population and to further explore and refine DBS as a therapeutic option for children with dystonia and other hyperkinetic movement disorders. Given the current scarcity of evidence available to clinicians, this centralized multicenter repository of clinical data is critical for addressing key research questions and improving clinical practice for pediatric DBS.

CONDITIONS

Official Title

A Multicenter Pediatric Deep Brain Stimulation Registry

Who Can Participate

Age: 0Years - 18Years
All Genders

Eligibility Criteria

Eligible

You may qualify if you...

  • Female or male patients between ages of 0-18 years.
  • Having received or scheduled to receive DBS for any neurological movement disorder.
  • Parents or legal guardians are able to provide written consent for prospective enrollment.
Not Eligible

You will not qualify if you...

  • None specified.

AI-Screening

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Trial Site Locations

Total: 1 location

1

Boston Children's Hospital

Boston, Massachusetts, United States, 02215

Actively Recruiting

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Research Team

D

Darius Ebrahimi-Fakhari, MD, PhD

CONTACT

K

Kathryn Yang, MBChB, FRCPC

CONTACT

How is the study designed?

Study Type

OBSERVATIONAL

Masking

N/A

Allocation

N/A

Model

N/A

Primary Purpose

N/A

Number of Arms

0

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