Actively Recruiting
The KidneyCARE (Community Access to Research Equity) Study
Led by Tufts Medical Center · Updated on 2025-05-13
50000
Participants Needed
1
Research Sites
2556 weeks
Total Duration
On this page
Sponsors
T
Tufts Medical Center
Lead Sponsor
N
National Kidney Foundation, United States
Collaborating Sponsor
AI-Summary
What this Trial Is About
For chronic kidney disease (CKD), there is a lack of unique and powerful platform for patient engagement, research studies and public health advocacy work. The National kidney Foundation (NKF) launched the first nationwide registry for people at all stages and types of CKD, including people on dialysis and kidney transplant recipients, called the KidneyCARE Study (kidneycarestudy.org). The KidneyCARE Study is a non-interventional research study which means participants will not have to take medications or do any additional tests to participate. They are simply asked to share some personal and health information, and their experiences with their disease through a secure portal. The Study also collaborates with health systems to obtain additional electronic health records (EHR) data. This unique combination of data collected will address the gap of individualized educational resources and will enhance clinical research, clinical care, and health policy decisions to be centered on the patient. The Study is all online and can be accessed any time of day at kidneycarestudy.org. Participation is voluntary and free.
CONDITIONS
Official Title
The KidneyCARE (Community Access to Research Equity) Study
Who Can Participate
Eligibility Criteria
You may qualify if you...
- Patients with any stage of chronic kidney disease, including those on dialysis and kidney transplant recipients
- Age 18 years and older
- Willing to participate and complete informed consent and assent forms as applicable
- Able to participate in the study, initially in English
- Patients affiliated with Geisinger Health System who have consented to be contacted for research
You will not qualify if you...
- Not diagnosed with chronic kidney disease
- Under 18 years of age
- Unwilling to participate or to complete informed consent
AI-Screening
AI-Powered Screening
Complete this quick 3-step screening to check your eligibility
Trial Site Locations
Total: 1 location
1
Geisinger Clinic
Danville, Pennsylvania, United States, 17822
Actively Recruiting
Research Team
L
Lesley A Inker, MD, MS
CONTACT
K
Kerry Willis, PhD
CONTACT
How is the study designed?
Study Type
OBSERVATIONAL
Masking
N/A
Allocation
N/A
Model
N/A
Primary Purpose
N/A
Number of Arms
1
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