Actively Recruiting
Lymphatic Anomalies Registry for the Assessment of Outcome Data
Led by Boston Children's Hospital · Updated on 2026-04-24
1000
Participants Needed
1
Research Sites
1147 weeks
Total Duration
On this page
Sponsors
B
Boston Children's Hospital
Lead Sponsor
L
Lymphatic Malformation Institute
Collaborating Sponsor
AI-Summary
What this Trial Is About
Lymphatic anomalies are a rare subset of vascular anomalies that are poorly understood. the understanding of the natural history, long-term outcomes, risk factors for morbidity and mortality, and the relative benefit of medical therapies and procedures is limited.The goal of this project is to better understand these diseases and improve the care of theses rare patients. To do this, the investigators are conducting an observational study of patients with lymphatic anomalies, including an annual follow-up questionnaire to gather prospective data on mortality, morbidity, treatments, and functionality as well as quality of life.
CONDITIONS
Official Title
Lymphatic Anomalies Registry for the Assessment of Outcome Data
Who Can Participate
Eligibility Criteria
You may qualify if you...
- Clinical diagnosis of complex vascular tumor, malformation or overgrowth syndrome with significant lymphatic component
You will not qualify if you...
History of severe allergic reactions to study medication Currently pregnant or breastfeeding Recent participation in another clinical trial within the last 30 days Presence of uncontrolled medical conditions that could affect safety
AI-Screening
AI-Powered Screening
Complete this quick 3-step screening to check your eligibility
Trial Site Locations
Total: 1 location
1
Boston Children's Hospital
Boston, Massachusetts, United States, 02115
Actively Recruiting
Research Team
K
Kelsey Deemer, BS
CONTACT
M
Meghan O'Hare, CPNP
CONTACT
How is the study designed?
Study Type
OBSERVATIONAL
Masking
N/A
Allocation
N/A
Model
N/A
Primary Purpose
N/A
Number of Arms
0
Not the Right Trial for You?
Explore thousands of other clinical trials that might be a better match.
Sign up to get personalized trial recommendations delivered to your inbox.
Already have an account? Log in here