Actively Recruiting
Qualitative Study in Patients With Genodermatoses and Healthcare Professionals on Reproductive Counselling
Led by Maastricht University Medical Center · Updated on 2025-05-18
25
Participants Needed
1
Research Sites
104 weeks
Total Duration
On this page
AI-Summary
What this Trial Is About
The goal of this observational study is to understand the perspectives and needs of patients with genodermatoses and their partners who wish to have children, regarding their decision-making process and their consideration of reproductive options. Additionally, the investigators aim to investigate the level of knowledge and perspectives of healthcare professionals (such as clinical geneticists, dermatologists and other clinicians involved), and want to explore to what extent patients and their partners are well informed about these reproductive options. To achieve this, the investigators will conduct individual semi-structured qualitative interviews with participants affected by genodermatoses (and their partners) and with healthcare professionals.
CONDITIONS
Official Title
Qualitative Study in Patients With Genodermatoses and Healthcare Professionals on Reproductive Counselling
Who Can Participate
Eligibility Criteria
You may qualify if you...
- Adult patients with genodermatosis (such as keratinisation disorders, skin fragility diseases, ectodermal dysplasias, dermato-oncological syndromes, or other genodermatoses) who want to have children
- Partners of patients who also wish to have children, if applicable
- Patients must have a clinically and molecularly confirmed diagnosis of genodermatosis
- Healthcare professionals involved in the care of genodermatology patients, including clinical geneticists and dermatologists
You will not qualify if you...
- Inability to communicate verbally in Dutch or English
AI-Screening
AI-Powered Screening
Complete this quick 3-step screening to check your eligibility
Trial Site Locations
Total: 1 location
1
Maastricht University Medical Center
Maastricht, Limburg, Netherlands, 6202 AZ
Actively Recruiting
Research Team
F
Fauve C van Veen, MD
CONTACT
How is the study designed?
Study Type
OBSERVATIONAL
Masking
N/A
Allocation
N/A
Model
N/A
Primary Purpose
N/A
Number of Arms
6
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