Actively Recruiting
Adolescents and Young Adults With Cancer: Their Preferred Involvement in Decision Making
Led by Stanford University · Updated on 2026-02-27
100
Participants Needed
1
Research Sites
N/A
Total Duration
On this page
AI-Summary
What this Trial Is About
Researchers are studying how adolescents and young adults (ages 15 to 29) with cancer prefer to be involved in decisions about their treatment. This study uses hypothetical scenarios to explore their desired roles in decision-making and factors that influence these preferences. The goal is to understand what helps or hinders shared decision-making between patients, healthcare providers, and family or friends. Participants will complete an electronic socio-demographic questionnaire and then respond to hypothetical clinical decision-making scenarios. These scenarios assess whether they prefer an active, collaborative, or passive role in decisions about their cancer care and how much influence they want from providers and family. The survey is delivered online with reminders as needed. During the study, researchers will analyze participants' responses to understand the distribution of decision-making roles within two weeks of survey completion. Additional evaluations will look at links between demographic factors and decision preferences, agreement between interview answers and scenario responses, and how healthcare visits relate to decision roles. Participants complete the survey and may be interviewed within four weeks to provide further insights. Total study participation time varies.
CONDITIONS
Brief Title
Adolescents and Young Adults With Cancer: Their Preferred Involvement in Decision Making
Who Can Participate
Eligibility Criteria
You may qualify if you...
- Age between 15 and 29 years
- Diagnosis of cancer and currently on therapy, at end-of-life, or a survivor within the past year
- Speaks English
- Reads English
- Cognitively and physically able to participate
You will not qualify if you...
- Unable to participate due to developmental delay or developmental disorder
AI-Screening
AI-Powered Screening
Complete this quick 3-step screening to check your eligibility
Your Study Journey
Duration - 2 to 4 weeks
Participants are screened for eligibility to participate in the trial.
1 visit (in-person or remote)
Duration - Up to 4 weeks
Participants complete an electronic socio-demographic questionnaire and a set of hypothetical clinical decision-making scenarios to assess their preferred decision-making roles and involvement of healthcare providers and family/friends.
1 electronic survey session with possible follow-up interview within 4 weeks
Trial Site Locations
Total: 1 location
1
Stanford University
Palo Alto, California, United States, 94304
Actively Recruiting
Research Team
S
Swathi Alagandula
How is the study designed?
Study Type
INTERVENTIONAL
Masking
NONE
Allocation
NA
Model
SINGLE_GROUP
Primary Purpose
SUPPORTIVE_CARE
Number of Arms
1
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