Actively Recruiting
Evaluation of Therapeutic Adherence Among Patients Followed in the Department of Hereditary Metabolic Diseases at Necker Hospital
Led by Assistance Publique - Hôpitaux de Paris · Updated on 2026-03-10
200
Participants Needed
1
Research Sites
104 weeks
Total Duration
On this page
Sponsors
A
Assistance Publique - Hôpitaux de Paris
Lead Sponsor
U
URC-CIC Paris Descartes Necker Cochin
Collaborating Sponsor
AI-Summary
What this Trial Is About
The purpose of this study is to evaluate treatment adherence among patients followed in the Department of Inherited Metabolic Diseases at Necker Hospital, in order to assess the need for implementing a therapeutic education workshop focused on medication adherence.
CONDITIONS
Official Title
Evaluation of Therapeutic Adherence Among Patients Followed in the Department of Hereditary Metabolic Diseases at Necker Hospital
Who Can Participate
Eligibility Criteria
You may qualify if you...
- Patients followed in the Hereditary Metabolic Diseases department at Necker Hospital during their usual care visits
- Patients taking a specific daily oral medication treatment
- Children aged 7 years or older, adolescents, and young adults up to 20 years
- Informed consent provided by patients or their legal guardians
You will not qualify if you...
- Patients with metabolic diseases not treated with oral medications (e.g., intravenous treatments, amino acid mixtures, dietary regimens)
- Patients or parents not proficient in French
- Refusal to participate by patients or their legal guardians
AI-Screening
AI-Powered Screening
Complete this quick 3-step screening to check your eligibility
Trial Site Locations
Total: 1 location
1
Hôpital Necker-Enfants Malades
Paris, France, 75015
Actively Recruiting
Research Team
M
Margaux GASCHIGNARD, M.D.
CONTACT
H
Hélène Morel
CONTACT
How is the study designed?
Study Type
OBSERVATIONAL
Masking
N/A
Allocation
N/A
Model
N/A
Primary Purpose
N/A
Number of Arms
1
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