Actively Recruiting
Myotonic Dystrophy Family Registry
Led by Myotonic Dystrophy Foundation · Updated on 2024-11-21
3500
Participants Needed
1
Research Sites
887 weeks
Total Duration
On this page
AI-Summary
What this Trial Is About
The Myotonic Dystrophy Family Registry (MDFR) is an online, patient-entered database that collects information on myotonic dystrophy (DM) to aid researchers in developing new, effective treatments and help identify participants for research studies and clinical trials.
CONDITIONS
Official Title
Myotonic Dystrophy Family Registry
Who Can Participate
Eligibility Criteria
You may qualify if you...
- Diagnosed with congenital, juvenile-onset or adult onset DM1 or DM2 (confirmed by clinical exam or genetic test)
You will not qualify if you...
- Not diagnosed with DM, unaffected family members
AI-Screening
AI-Powered Screening
Complete this quick 3-step screening to check your eligibility
Trial Site Locations
Total: 1 location
1
Myotonic Dystrophy Foundation
Oakland, California, United States, 94612
Actively Recruiting
Research Team
S
Sofia Olmos, PhD
CONTACT
How is the study designed?
Study Type
OBSERVATIONAL
Masking
N/A
Allocation
N/A
Model
N/A
Primary Purpose
N/A
Number of Arms
0
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