Actively Recruiting
Natural History Study for Charcot Marie Tooth Disease
Led by Hereditary Neuropathy Foundation · Updated on 2024-10-01
10000
Participants Needed
1
Research Sites
843 weeks
Total Duration
On this page
AI-Summary
What this Trial Is About
The goal of this Natural History Study for Charcot-Marie-Tooth is to acquire, record, and analyze patient-reported data and associated genetic reports, Electronic Health Records (EHRs) and clinical notes to identify the burden, diagnostic journey, and prevalence of disease that will aid scientists in their work toward finding a cure. Participants will be asked to complete a Natural History Survey.
CONDITIONS
Official Title
Natural History Study for Charcot Marie Tooth Disease
Who Can Participate
Eligibility Criteria
You may qualify if you...
- Patients will be informed about the study and invited to participate
- Participants must review and sign electronic informed consent
- All individuals affected by Charcot-Marie-Tooth or inherited neuropathies can join with proper consent
- Children, adolescents, and adults with confirmed or suspected Charcot-Marie-Tooth or inherited neuropathies are eligible with parent or guardian consent
- Eligibility includes clinical diagnosis through family history, clinical testing, or genetic testing, or suspicion of Charcot-Marie-Tooth or inherited neuropathies
You will not qualify if you...
- Individuals who do not have Charcot-Marie-Tooth disease or other inherited neuropathies are not eligible
AI-Screening
AI-Powered Screening
Complete this quick 3-step screening to check your eligibility
Trial Site Locations
Total: 1 location
1
Hereditary Neuropathy Foundation
New York, New York, United States, 10128
Actively Recruiting
Research Team
A
Allison Moore
CONTACT
J
Joy Aldrich
CONTACT
How is the study designed?
Study Type
OBSERVATIONAL
Masking
N/A
Allocation
N/A
Model
N/A
Primary Purpose
N/A
Number of Arms
0
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