Actively Recruiting
Palliative and Supportive Care to Help People With Arthritis to Live Well (ENRICH)
Led by Dorothy House Hospice · Updated on 2026-03-25
120
Participants Needed
1
Research Sites
58 weeks
Total Duration
On this page
Sponsors
D
Dorothy House Hospice
Lead Sponsor
U
University of the West of England
Collaborating Sponsor
AI-Summary
What this Trial Is About
Palliative Care (PC) focuses on maximising quality of life and care for patients and their families in the last 1000 days of life. Supportive Care (SC) is provided earlier in life for people with a long-term health condition. People living with inflammatory arthritis, (such as rheumatoid arthritis) can experience ongoing pain, stiffness, limitations in their joints, and intrusive fatigue. This impacts daily living activities and emotional well-being. People with inflammatory arthritis would value support to manage symptoms across the course of their disease. They would like PC healthcare professionals (HCPs) to understand their conditions better, so they can live well to the end of their lives. Aims: The investigators will explore the potential role of Palliative and Supportive Care (PSC) for people with inflammatory arthritis. The investigators will describe any unmet patient need. The investigators will develop clinical and research recommendations to help people with inflammatory arthritis live well over the course of their disease. Plan: The investigators research will be conducted in three studies: Study 1: The investigators will conduct 1:1 online interviews with people with inflammatory arthritis to understand how PSC is perceived by them, and what their views are on how PSC may support them to live well. Study 2: The investigators will send an online survey to Rheumatologists, Primary Care, Community and PC HCPs, to understand: * if and how they work together currently; * their views on the role of PSC supporting people with inflammatory arthritis to live well. Study 3: The investigators will conduct online focus groups with volunteers from Studies 1 and 2, representatives from relevant national charities/organisations, and people who commission health services. Together the group will discuss the research findings and agree: * what the gap in patient care is; * recommendations for future clinical practice and research; * the key areas of importance for patients which should be measured in future work
CONDITIONS
Official Title
Palliative and Supportive Care to Help People With Arthritis to Live Well (ENRICH)
Who Can Participate
Eligibility Criteria
You may qualify if you...
- Adults (over 18 years) with a diagnosis of rheumatoid arthritis, psoriatic arthritis, juvenile idiopathic arthritis, or axial spondyloarthritis
- Able to understand and communicate in English or with an interpreter
- May or may not be currently receiving Palliative Care services
- Access to Microsoft Teams or a telephone
- Willing to share preferred contact details
You will not qualify if you...
- Cognitive impairment that affects communication
- Non-English speakers without access to an interpreter
AI-Screening
AI-Powered Screening
Complete this quick 3-step screening to check your eligibility
Trial Site Locations
Total: 1 location
1
Dorothy House Hospice
Bath, Wiltshire, United Kingdom, BA15 2LE
Actively Recruiting
Research Team
D
Dr Sharon Grieve Research Development and Delivery Lead, DPhil
CONTACT
How is the study designed?
Study Type
OBSERVATIONAL
Masking
N/A
Allocation
N/A
Model
N/A
Primary Purpose
N/A
Number of Arms
1
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