Actively Recruiting
Exploring Perspectives on Palliative and Supportive Care to Help People Live Well With Inflammatory Arthritis Throughout the Disease Course (ENRICH)
Led by Dorothy House Hospice · Updated on 2026-03-25
120
Participants Needed
1
Research Sites
12 weeks
Total Duration
On this page
Sponsors
D
Dorothy House Hospice
Lead Sponsor
U
University of the West of England
Collaborating Sponsor
AI-Summary
What this Trial Is About
This research aims to explore the role of Palliative and Supportive Care (PSC) in helping people with inflammatory arthritis live well throughout their disease. It focuses on understanding the needs of patients and how PSC might support them, particularly for those experiencing pain, stiffness, fatigue, and emotional challenges. The study will gather patient views and healthcare professional perspectives to identify unmet needs and develop recommendations for future care and research. The study is observational and consists of three parts: online interviews with people who have inflammatory arthritis to learn their views on PSC; surveys sent to rheumatologists, primary care, community, and palliative care healthcare professionals to understand current collaboration and opinions on PSC; and online focus groups involving patients, healthcare providers, charity representatives, and health service commissioners to discuss findings and agree on care gaps and priorities. Participants will take part through online interviews, surveys, and focus groups using platforms like Microsoft Teams or telephone. Researchers will collect and analyze their feedback to measure key outcomes over approximately one year. The study aims to provide insights that can improve clinical practice and research to better support people living with inflammatory arthritis over time, including those receiving or not receiving palliative care services.
CONDITIONS
Brief Title
Palliative and Supportive Care to Help People With Arthritis to Live Well (ENRICH)
Who Can Participate
Eligibility Criteria
You may qualify if you...
- Adults over 18 years old with a diagnosis of rheumatoid, psoriatic, juvenile idiopathic arthritis, or axial spondyloarthritis
- Ability to understand and communicate in English or use an interpreter
- Currently receiving or not receiving palliative care services
- Access to Microsoft Teams or a telephone for participation
- Consent to share preferred contact details
You will not qualify if you...
- Cognitive impairment that makes communication difficult
- Non-English speakers without an available interpreter
AI-Screening
AI-Powered Screening
Complete this quick 3-step screening to check your eligibility
Your Study Journey
Duration - 2 to 4 weeks
Participants are screened for eligibility to participate in the trial.
Duration - Approximately 1 year
Participants are observed over time to understand their experiences with inflammatory arthritis and supportive care.
Trial Site Locations
Total: 1 location
1
Dorothy House Hospice
Bath, Wiltshire, United Kingdom, BA15 2LE
Actively Recruiting
Research Team
D
Dr Sharon Grieve Research Development and Delivery Lead, DPhil
How is the study designed?
Study Type
OBSERVATIONAL
Masking
N/A
Allocation
N/A
Model
N/A
Primary Purpose
N/A
Number of Arms
1
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