Rare primary headaches in Italian tertiary Headache Centres: Three year nationwide retrospective data from the RegistRare Network.
Chiara Lupi, Luana Evangelista, Valentina Favoni...
https://pubmed.ncbi.nlm.nih.gov/29754500Actively Recruiting
All Genders
ID03416114
RegistRare: Retro-prospective Registry of Rare Primary Headaches in Italian Tertiary Headache Centres
Led by Silvia Benemei · Updated on 2018-01-30
3000
Participants Needed
1
Research Sites
N/A
Total Duration
On this page
Sponsors
S
Silvia Benemei
Lead Sponsor
U
University of Modena and Reggio Emilia
Collaborating Sponsor
AI-Summary
What this Trial Is About
Researchers are conducting a retro-prospective survey to study the prevalence and incidence of rare primary headaches in patients seen at Italian Tertiary Headache Centres. This observational registry collects data from May 1, 2014, onward, including both past records and ongoing annual data. The study focuses on rare primary headaches as defined in specific chapters of the International Classification of Headache Disorders (ICHD-3 beta). Patients diagnosed with rare primary headaches are invited to participate by providing informed consent. Data collected include demographic details, diagnosis, treatments, clinical features, and comorbidities. Information is securely encoded to avoid duplication and to track patients who visit multiple centres. Data collection is managed through a web-based platform. Participants provide consent and share their medical data for this long-term registry. Researchers track the incidence and prevalence of these headaches over a 10-year period within tertiary headache centres. The study monitors patients' headache characteristics and treatments without any interventions. The registry aims to enhance understanding of rare headaches by compiling comprehensive clinical information over time.
CONDITIONS
Brief Title
RegistRare: a Retro-prospective Registry of Rare Primary Headaches in Italian Tertiary Headache Centres
Who Can Participate
All Genders
Eligibility Criteria
You may qualify if you...
- Diagnosis of rare primary headaches (Part One, Chapter 3 and Chapter 4, ICHD-3 beta)
- Signed informed consent
You will not qualify if you...
- None reported or specified in the study criteria
AI-Screening
AI-Powered Screening
Complete this quick 3-step screening to check your eligibility
1
2
3
Your Study Journey
Screening
Duration - 2 to 4 weeks
Participants are screened for eligibility to participate in the trial.
Long-term Monitoring
Duration - From May 1, 2014 and ongoing through August 2027
Participants who have been diagnosed with rare primary headaches are observed over time through data collection on diagnosis, treatment, comorbidity, and clinical features.
Trial Site Locations
Total: 1 location
1
Careggi University Hospital
Florence, Italy, 50139
Actively Recruiting
Loading map...
Research Team
S
Silvia Benemei, MD
How is the study designed?
Study Type
OBSERVATIONAL
Masking
N/A
Allocation
N/A
Model
N/A
Primary Purpose
N/A
Number of Arms
0
Similar Trials
Frequently Asked Questions
Have more questions? Get in touch with our team for quick support
Not the Right Trial for You?
Explore thousands of other clinical trials that might be a better match.
Sign up to get personalized trial recommendations delivered to your inbox.
Already have an account? Log in here