Registry for Hirschsprung Disease of the BELAPS (Belgian Association of Pediatric Surgery)

What this Trial Is About

This research aims to collect detailed surgical and postoperative information about children with Hirschsprung's disease in Belgium to help improve surgical care. The study is a prospective registry that focuses on evaluating important long-term outcomes such as defecation habits several years after surgery. It also looks at risk factors related to constipation and incontinence as part of its secondary goals. Participants in this registry have undergone surgery for Hirschsprung's disease. The study gathers data before, during, and after surgery, tracking outcomes over a period extending to at least 10 years after the surgical procedure. The registry does not involve any experimental treatments but observes and records patient progress and health status. Throughout the study, researchers collect data on defecation habits, urinary and sexual function, and quality of life using tools like the Krickenbeck score. The overall goal is to understand long-term results and factors affecting patient well-being. Participation includes regular follow-up to monitor these outcomes, and involvement continues until children reach 18 years of age or longer as applicable.

Registry for Hirschsprung Disease of the BELAPS