Actively Recruiting
UPenn Observational Research Repository on Neurodegenerative Disease
Led by University of Pennsylvania · Updated on 2026-01-22
1000
Participants Needed
1
Research Sites
2609 weeks
Total Duration
On this page
Sponsors
U
University of Pennsylvania
Lead Sponsor
N
National Institutes of Health (NIH)
Collaborating Sponsor
AI-Summary
What this Trial Is About
The aim of this study is to create a repository of both cross-sectional and longitudinal data, including cognitive, linguistic, imaging and biofluid biological specimens, for neurodegenerative disease research and treatment.
CONDITIONS
Official Title
UPenn Observational Research Repository on Neurodegenerative Disease
Who Can Participate
Eligibility Criteria
You may qualify if you...
- Adults aged 18 years or older
- People diagnosed with neurodegenerative diseases such as frontotemporal degeneration, primary progressive aphasia, Lewy body disease, amyotrophic lateral sclerosis, progressive supranuclear palsy, corticobasal syndrome, posterior cortical atrophy, Alzheimer's disease, or Parkinson's disease
- People with a family history of neurodegenerative disease, whether or not they have symptoms or carry mutations
- People without any known neurological disease to provide control data
You will not qualify if you...
- Individuals under 18 years of age
- People with conditions or situations that could confuse study results or interfere with participation, including neurological, psychological, cardiac, neurosurgical, or infectious conditions
- Participants may be excluded from specific procedures for safety reasons, like those with non-MRI-safe metal implants or on blood thinners who cannot have lumbar punctures
- Pregnant women; research activities that pose risk during pregnancy will be paused until after pregnancy
AI-Screening
AI-Powered Screening
Complete this quick 3-step screening to check your eligibility
Trial Site Locations
Total: 1 location
1
University of Pennsylvania
Philadelphia, Pennsylvania, United States, 19104
Actively Recruiting
Research Team
E
Emily Xie
CONTACT
D
Dahlia Kamel
CONTACT
How is the study designed?
Study Type
OBSERVATIONAL
Masking
N/A
Allocation
N/A
Model
N/A
Primary Purpose
N/A
Number of Arms
2
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