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Advocacy Groups

Tokenization in Clinical Trials: What Should Advocacy Groups Ask Sponsors About Patient Privacy
Tokenization has become one of the most widely adopted data techniques in modern clinical ...

How advocacy groups turn patient registries into clinical trials
For most rare and chronic disease communities, the biggest obstacle to research is not sci...

The Diversity Action Plan debate, explained for advocacy groups
A federal rule that was supposed to make clinical trials more representative of the people...

Master protocols in rare disease research: why one study can serve many patients
A rare disease is one that affects fewer than 200,000 people in the United States. The Nat...

Synthetic control arms and placebos: what advocacy groups can teach their communities
Placebo fear is one of the most common reasons people turn down a clinical trial. Communit...

How advocacy groups can lead community pre-screening for clinical trials
Advocacy groups have always sat close to the people clinical research most needs to reach....
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