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Advocacy Groups

Decentralized Clinical Trials: an advocacy checklist for digital inclusion
Decentralized clinical trials are being promoted as a way to bring research to the partici...

Clinical Trial Data Governance: What Advocacy Groups Should Verify Before Endorsing a Study
Patient information now travels further than most study participants expect. A study that ...

Tokenization in Clinical Trials: What Should Advocacy Groups Ask Sponsors About Patient Privacy
Tokenization has become one of the most widely adopted data techniques in modern clinical ...

How advocacy groups turn patient registries into clinical trials
For most rare and chronic disease communities, the biggest obstacle to research is not sci...

The Diversity Action Plan debate, explained for advocacy groups
A federal rule that was supposed to make clinical trials more representative of the people...

Master protocols in rare disease research: why one study can serve many patients
A rare disease is one that affects fewer than 200,000 people in the United States. The Nat...
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