Canadian Registry for Adults with Non-CF Bronchiectasis and Nontuberculosis Mycobacteria NTM

What this Trial Is About

Researchers are working to create a detailed patient registry for adults diagnosed with non-CF bronchiectasis andor Nontuberculosis Mycobacteria NTM. The purpose of this project is to collect complete clinical information and quality of life data to better understand these conditions. This observational study is sponsored by the University of Calgary and seeks to gather comprehensive data from patients aged over 18 years. The study includes adults with either non-CF bronchiectasis, with or without NTM, or those with NTM alone. Participants clinical details and assessments of their quality of life will be entered into a centralized patient registry. There are no specific treatments or interventions being tested, as this is an observational data collection study. Participants will provide their health information to be recorded in the registry. This includes clinical data and quality of life evaluations. The main outcome measured is patient recruitment and data analysis related to NTM and bronchiectasis, with follow-up planned through December 2050. Participation involves sharing medical records and completing questionnaires over time to support research on these lung conditions.

Development of a Canadian Bronchiectasis and NTM Database