Actively Recruiting
Development of a Canadian Bronchiectasis and Nontuberculosis Mycobacteria (NTM) Database
Led by University of Calgary · Updated on 2023-11-22
2000
Participants Needed
1
Research Sites
N/A
Total Duration
On this page
Sponsors
U
University of Calgary
Lead Sponsor
I
Insmed Incorporated
Collaborating Sponsor
AI-Summary
What this Trial Is About
Researchers are working to create a detailed patient registry for adults diagnosed with non-CF bronchiectasis and/or Nontuberculosis Mycobacteria (NTM). The purpose of this project is to collect complete clinical information and quality of life data to better understand these conditions. This observational study is sponsored by the University of Calgary and seeks to gather comprehensive data from patients aged over 18 years. The study includes adults with either non-CF bronchiectasis, with or without NTM, or those with NTM alone. Participants' clinical details and assessments of their quality of life will be entered into a centralized patient registry. There are no specific treatments or interventions being tested, as this is an observational data collection study. Participants will provide their health information to be recorded in the registry. This includes clinical data and quality of life evaluations. The main outcome measured is patient recruitment and data analysis related to NTM and bronchiectasis, with follow-up planned through December 2050. Participation involves sharing medical records and completing questionnaires over time to support research on these lung conditions.
CONDITIONS
Brief Title
Development of a Canadian Bronchiectasis and NTM Database
Who Can Participate
Eligibility Criteria
You may qualify if you...
- Over the age of 18
- Diagnosed with non-CF bronchiectasis
- Diagnosed with Nontuberculosis Mycobacteria (NTM)
You will not qualify if you...
- Under the age of 18
- Diagnosed with cystic fibrosis (CF) bronchiectasis
AI-Screening
AI-Powered Screening
Complete this quick 3-step screening to check your eligibility
Your Study Journey
Duration - 2 to 4 weeks
Participants are screened for eligibility to participate in the trial.
1 visit (in-person)
Duration - Up to December 2050
Participants who undergo routine care are observed with their clinical data and quality of life assessments entered into a patient registry.
Visits as per routine clinical care
Trial Site Locations
Total: 1 location
1
University of Calgary
Calgary, Alberta, Canada, T2N4N1
Actively Recruiting
How is the study designed?
Study Type
OBSERVATIONAL
Masking
N/A
Allocation
N/A
Model
N/A
Primary Purpose
N/A
Number of Arms
2
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