Dutch Pediatric Cardiac Arrest Registry Study Tracking Long-Term Recovery and Outcomes After In-Hospital or Out-of-Hospital Cardiac Arrest

What this Trial Is About

This research aims to better understand the long-term outcomes of children in the Netherlands who experience cardiac arrest, whether in or out of the hospital. The study focuses on survival rates, neurological outcomes, emergency care, and how children and their families adjust over time after the event. It is an observational registry collecting data from routine medical care without additional interventions. The study includes children under 18 years old who have had a cardiac arrest and were treated by emergency services or admitted to one of seven academic pediatric hospitals. Cardiac arrest is defined as no pulse or the need for chest compressions lasting at least one minute. Data are gathered from medical records and follow-up visits at 3, 12, and 24 months after arrest, and at ages 5, 8, 12, and 17 years depending on the childs age at arrest. Participants routine care data are collected anonymously, and survivors are invited for follow-up assessments that include physical, neurological, and psychological evaluations using standardized tools. Researchers monitor long-term neurological outcomes and family functioning through outpatient visits, ensuring data quality through audits and validation. The study will continue collecting data over many years to explore recovery patterns and outcomes.

Dutch Registry of Pediatric Cardiac Arrest