Actively Recruiting
Identifying Genetic Causes of IC/BPS
Led by Boston Children's Hospital · Updated on 2025-12-16
1000
Participants Needed
1
Research Sites
1302 weeks
Total Duration
On this page
AI-Summary
What this Trial Is About
Interstitial cystitis (IC), also called Bladder Pain syndrome (BPS) is a common condition with no known cause or cure. Twin studies and family accounts have suggested that the condition may be genetic or passed down (inherited) from one generation to another. In this study, the investigators are collecting genetic material via blood or saliva and medical information from families in North America in an attempt to identify genetic factors that may cause IC/BPS. The investigators are enrolling inviduals with IC/BPS and their family members (family members with and without IC like symptoms). Travel to Boston not required.
CONDITIONS
Official Title
Identifying Genetic Causes of IC/BPS
Who Can Participate
Eligibility Criteria
You may qualify if you...
- Diagnosis of IC/BPS
- Males and females of any age
- Urinary frequency of more than once per hour, and/or
- Dysuria, and/or
- Pelvic, suprapubic, or abdominal pain lasting 3 months or longer
- Nocturia
- Normal urinary stream by history
- No evidence of active bacterial urinary tract infection (no pyuria and negative urine culture in the last 3 months)
- First-degree relative of someone with the above symptoms
You will not qualify if you...
- Major structural or anatomical urinary tract abnormalities detected by ultrasound
- Underlying inborn conditions affecting the urinary tract
- Past surgery or chemotherapy affecting the pelvic area
- Gastrointestinal or genitourinary cancers
- Severe constipation in children only
AI-Screening
AI-Powered Screening
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Trial Site Locations
Total: 1 location
1
Boston Children's Hospital (BCH)
Boston, Massachusetts, United States, 02115
Actively Recruiting
Research Team
E
Elicia A Estrella, MS, LCGC
CONTACT
S
Stephanie Brewster, MS, LCGC
CONTACT
How is the study designed?
Study Type
OBSERVATIONAL
Masking
N/A
Allocation
N/A
Model
N/A
Primary Purpose
N/A
Number of Arms
1
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