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Age: 16Years +
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ID04284189

Study on Follow-Up Care and Transition to Adult Services for Childhood Cancer Survivors in Switzerland

Led by Kantonsspital Aarau · Updated on 2022-08-17

140

Participants Needed

3

Research Sites

278 weeks

Total Duration

AI-Summary

What this Trial Is About

This research aims to understand how follow-up care is managed for survivors of childhood cancer in Switzerland as they move from pediatric to adult healthcare. It focuses on adolescent and young adult survivors who have completed cancer treatment and are living with potential late effects. The study compares three different transition models to find out which best meets survivors needs and helps maintain regular follow-up care. Participants are part of a multicenter study involving three pediatric oncology centers in Switzerland. Survivors receive questionnaires about their cancer knowledge, worries, self-management skills, ongoing care, and expectations related to their follow-up care. Questionnaires are sent before and after their transition to adult care, with follow-ups at three and fifteen months to track changes over time. During the study, participants complete several questionnaires assessing their readiness for transition and knowledge about their cancer history. The study measures cancer worry, self-management, ongoing care needs, and expectations at baseline, three months, and fifteen months. Data helps improve transition strategies, aiming for better adherence to adult follow-up care. The total participation time covers these assessments over more than a year, supporting long-term survivor care.

CONDITIONS

Brief Title

Aftercare of Childhood Cancer Survivors in Switzerland

Research Team

K

Katrin Scheinemann, MD

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