Effects of a coach-guided video-conferencing expressive writing program on facilitating grief resolution in adults with SCI.
Hon K Yuen, Elizabeth Vander Kamp, Salaam Green...
https://pubmed.ncbi.nlm.nih.gov/37682297Actively Recruiting
Age: 18Years +
All Genders
Healthy Volunteers
ID04721717
AIM's Writing for Healing: A Workshop for Individuals Living With Paralysis
Led by University of Alabama at Birmingham · Updated on 2025-08-08
160
Participants Needed
1
Research Sites
N/A
Total Duration
On this page
AI-Summary
What this Trial Is About
This research aims to support adults living with paralysis caused by neurological conditions such as spinal cord injury, traumatic head injury, stroke, multiple sclerosis, transverse myelitis, and amyotrophic lateral sclerosis (ALS). It focuses on using expressive emotional writing as a way to help individuals cope with grief related to loss of physical ability, social roles, and life goals. The program seeks to shift participants' mindsets from focusing on their disabilities to restoring daily function and improving emotional well-being. The expressive emotional writing program will be offered over 10 consecutive weeks, with weekly writing activities held at two community organizations, the Is-Able Center and the Lakeshore Foundation in Birmingham, Alabama. These organizations provide supportive services for individuals with disabilities. The program includes facilitators who guide writing activities and discussions, and participants may receive mileage reimbursement for attending. Participants will be involved in writing sessions and discussions while their emotional and physical health will be assessed using multiple measures such as grief and loss scales, depression and stress assessments, sleep disturbance, social role participation, resilience, and caregiver burden. Biological measures like cortisol levels will also be collected. The total participation time is 11 weeks, with evaluations conducted to understand the program's impact on quality of life and emotional distress.
CONDITIONS
Brief Title
AIM's Writing for Healing: A Workshop for Individuals Living With Paralysis
Who Can Participate
Age: 18Years +
All Genders
Healthy Volunteers
Eligibility Criteria
You may qualify if you...
- Age 18 or older with paralysis living in the community
- Paralysis caused by traumatic events or neurological diseases such as spinal cord injury, head injury, stroke, multiple sclerosis, transverse myelitis, poliomyelitis, peripheral neuropathy, Parkinson's disease, ALS, botulism, or Guillain-Barré syndrome occurring after childhood
- Non-traumatic spinal cord injury caused by arthritis, cancer, inflammation, infections, or disk degeneration of the spine
- Caregivers of people with amyotrophic lateral sclerosis
- Able to communicate verbally or through writing
You will not qualify if you...
- Known maladaptive behavioral patterns or overt psychotic symptoms such as hallucinations, delusions, or thought disorders
- Congenital conditions like spina bifida or cerebral palsy
AI-Screening
AI-Powered Screening
Complete this quick 3-step screening to check your eligibility
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2
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Your Study Journey
Screening
Duration - 2 to 4 weeks
Participants are screened for eligibility to participate in the trial.
1 visit (in-person)
Monitoring
Duration - 10 weeks
Participants engage in a 10-week expressive emotional writing program with weekly writing activities to support coping and healing.
Weekly visits at community organizations
Trial Site Locations
Total: 1 location
1
354 School of Health Professions Building
Birmingham, Alabama, United States, 35294
Actively Recruiting
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How is the study designed?
Study Type
OBSERVATIONAL
Masking
N/A
Allocation
N/A
Model
N/A
Primary Purpose
N/A
Number of Arms
1
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