Actively Recruiting
Inspiring New Science In Guiding Healthcare in Turner Syndrome Registry
Led by University of Colorado, Denver · Updated on 2024-10-01
5000
Participants Needed
10
Research Sites
280 weeks
Total Duration
On this page
AI-Summary
What this Trial Is About
INSIGHTS is a registry research study that collects key information on medical history for girls and women with Turner syndrome and the clinical care they receive. This includes genetic tests, imaging, medications, and more for hundreds of patients seen at a number of clinics across the US. In addition to learning a lot about the current state of health for individuals with TS, INSIGHTS serves as an infrastructure to conduct future studies are meaningful to patients and their families.
CONDITIONS
Official Title
Inspiring New Science In Guiding Healthcare in Turner Syndrome Registry
Who Can Participate
Eligibility Criteria
You may qualify if you...
- Individuals with Turner syndrome or Turner syndrome variants as defined by the Turner syndrome Clinical Practice Guideline, including those with karyotype consistent with Turner syndrome, phenotypic female, or clinical features of Turner syndrome
- Ability to provide informed consent or assent as appropriate
You will not qualify if you...
- Lack of a Turner syndrome diagnosis on file
AI-Screening
AI-Powered Screening
Complete this quick 3-step screening to check your eligibility
Trial Site Locations
Total: 10 locations
1
Children's Hospital Colorado
Aurora, Colorado, United States, 80045
Actively Recruiting
2
Children's National
Washington D.C., District of Columbia, United States, 20010
Actively Recruiting
3
Lurie Children's
Glenview, Illinois, United States, 60026
Actively Recruiting
4
University of Kansas
Lawrence, Kansas, United States, 66045
Actively Recruiting
5
UNC Hospitals Children's Specialty Clinic
Chapel Hill, North Carolina, United States, 27514
Actively Recruiting
6
Cincinnati Children's Hospital Medical Center
Cincinnati, Ohio, United States, 45229
Actively Recruiting
7
Nationwide Childern's Hospital
Columbus, Ohio, United States, 43205
Actively Recruiting
8
Children's Hospital of Philadelphia
Philadelphia, Pennsylvania, United States, 19104
Actively Recruiting
9
The University of Texas Health Science Center at Houston
Houston, Texas, United States, 77030
Actively Recruiting
10
Seattle Children's
Seattle, Washington, United States, 98105
Actively Recruiting
Research Team
S
Shanlee M Davis, MD, PhD
CONTACT
How is the study designed?
Study Type
OBSERVATIONAL
Masking
N/A
Allocation
N/A
Model
N/A
Primary Purpose
N/A
Number of Arms
0
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