National Survey of Physical Activity Restrictions and Quality of Life Among Patients With Fibromuscular Dysplasia

What this Trial Is About

Fibromuscular dysplasia (FMD) is a disease affecting medium-sized arteries without plaque or inflammation, mainly impacting women and middle-aged adults. Some patients with FMD may experience serious complications like heart attacks, strokes, aneurysms, or blood vessel tears. Due to these risks, many patients are advised to restrict physical activities, but there are no formal guidelines on appropriate exercise for FMD, which may affect their quality of life and cause confusion. This research is an observational national survey conducted electronically to gather information from patients diagnosed with FMD about the types of physical activity restrictions they have received and how these impact their quality of life and emotional well-being. The survey aims to collect data to support the development of expert consensus recommendations on physical activity tailored to different FMD types, which could improve patient education and empowerment. Participants will complete an electronic survey assessing clinician-recommended physical activity restrictions, self-reported changes in activity after diagnosis, and the emotional and physical effects of these recommendations. The study will measure these outcomes at baseline to understand the current impact on patients. The total participation involves completing the survey online, with no additional treatments or visits required.

Survey on Physical Activity and Qualify of Life in Fibromuscular Dysplasia