Actively Recruiting
Survey on Physical Activity and Qualify of Life in Fibromuscular Dysplasia
Led by Vanderbilt University Medical Center · Updated on 2026-04-20
2000
Participants Needed
1
Research Sites
63 weeks
Total Duration
On this page
Sponsors
V
Vanderbilt University Medical Center
Lead Sponsor
F
Fibromuscular Dysplasia Society of America
Collaborating Sponsor
AI-Summary
What this Trial Is About
Fibromuscular dysplasia (FMD) is a disease of the arteries that is not due to plaque build-up or inflammation. While some patients with FMD are health, some may experience heart attacks, strokes, aneurysms or blood vessel dissection/tearing which can be life-threatening. It predominantly impacts women and younger patients. As a result of this diagnosis, many patients are counseled to restrict or avoid certain physical activities out of concern for provoking or worsening vascular complications. There are no guidelines or consensus recommendations regarding appropriate physical activity for patients with FMD. The lack of consensus may lead to confusion for patients and may negatively impact their quality of life. This study will conduct a large, national survey of patients with FMD to assess the type of physical activity restrictions and impact on quality of life and emotional well-being.
CONDITIONS
Official Title
Survey on Physical Activity and Qualify of Life in Fibromuscular Dysplasia
Who Can Participate
Eligibility Criteria
You may qualify if you...
- Diagnosed with fibromuscular dysplasia
- Aged between 18 and 100 years
You will not qualify if you...
- Unable to complete the electronic consent form or survey
- Non-English speaking and unable to read the electronic consent form or survey
AI-Screening
AI-Powered Screening
Complete this quick 3-step screening to check your eligibility
Trial Site Locations
Total: 1 location
1
Vanderbilt University Medical Center
Nashville, Tennessee, United States, 37232
Actively Recruiting
Research Team
A
Amanda Morrison, MD
CONTACT
How is the study designed?
Study Type
OBSERVATIONAL
Masking
N/A
Allocation
N/A
Model
N/A
Primary Purpose
N/A
Number of Arms
1
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